Charcot-Marie-Tooth: A Tornado?

“Storms” Photo by Johannes Plenio

To my surprise, my quiet Sunday ended with a tornado passing within a mile of my house without my knowledge until a few days after it was over. Unfortunately, yet fortunately, this exposed a flaw in my emergency preparedness, sparking concern for other storms.

Sundays are my favorite day of the week. I attend church in the morning, have lunch, and take my afternoon nap. That week was a little different, as my wife was out of town attending the Gaither Homecoming Friends concerts in Gatlinburg, TN, with a lady friend. I stayed home with our pets. Instead of eating out for lunch, I grilled myself a steak and shrimp dinner after my nap. Dinner was delicious. It was followed by an evening reading on the deck, one of my favorite pastimes in the warm weather season.

However, not too long into my reading, I noticed thunderstorms approaching the area. I heard them off to the west, but they didn’t seem severe, nor did they appear to be coming this way. There weren’t any weather alerts out, nor was I hearing a lot of thunder. Also, sometimes storms follow the mountains and go north, never really affecting our area. So, I continued reading and listening to my music.

However, my dog Abby was hearing or sensing something I was not. She normally isn’t concerned about thunderstorms and doesn’t want to go inside if it’s raining, especially if deer are in the field. She approached me at my chair and then went to the sliding glass door as if to say, “OK, it’s time to go inside. Let’s go!”

It was almost 9 p.m., so I decided to head to bed and read for a while. There was no sense in getting into computer stuff or turning on the TV because there would likely be a power failure as the storm went through. 

As I curled in bed to read, I opened the window and turned on my music. It wasn’t long before the bedroom door started shaking. I thought the storm pushing through was causing it, so I closed the window and went back to my reading. I became concerned that maybe my cat needed something, so I went to check on him. As I did, my dog headed to the hall bathroom and hid. That was unusual. 

During this, I missed any weather alerts about possible tornado activity in our area. However, my best friend in Arkansas didn’t—he immediately texted me about a tornado warning. With only a few minutes left of the warning, and I didn’t hear any unusual weather, I went to sleep. 

The following morning, I learned that I had missed all of the weather alerts the National Weather Service sent out. Why? Since I have several apps on my phone, they alerted me to the incoming storms and a tornado warning. I didn’t receive the alerts because I do not sleep with my phone. Charcot-Marie-Tooth (CMT) causes sleeping issues for me, so I leave my phone charging downstairs so I’m not disturbed. The tablet that I used for reading was with me; however, it didn’t have any weather alerts.

As a CMT patient, I believe I should be extra prepared. Whatever we can do to prepare for an emergency or stressful situation is best. The next day, I took some time to look at weather alert apps and radios.

I found an app created by the American Red Cross that looked to be perfect for alerting me to bad weather. I installed and programmed it on my tablet to alert me for weather specific to my area. That evening, I learned that the app worked great as tornado watches were issued by the National Weather Service.

When the weather radio arrived, I programmed it for my area, set it up in a central location of my home, and let it go. I bought a Midland product because I’ve had good luck with them and heard good remarks about them. It was set up in the family room for about a week before I had a chance to learn if it worked and if I programmed it correctly. 

If you live in an area with severe storms, such as tornados or hurricanes to name two, you should be as prepared as you can. Even though I do not live in those storm-prone areas, I do a few routine things to help me should there be an emergency. Every night, I place my shoes, braces, and extra shoes in a specific area of the house. When I use them during the day, they are returned to their spot. That way, I can grab and go. Clothing is placed in a spot where I can grab them, too. Also, my phone is always left charging in the same place. Grab and go, should I need to do so. My dog’s leashes are kept in certain locations in the house, so there is no last-second searching. These may sound a bit trivial or routine, but it would help in an emergency. For me, fewer steps to finding something is better as it means less pain in my feet and less anxiety in an emergency.

Happy Spring!

You might be thinking that I am a day behind since the first day of Spring, the Vernal Equinox was yesterday, not today. I have been traveling and am a bit behind. Also, I was thinking spring started today but everything is a bit earlier this year and I didn’t catch it.

Since this is probably my favorite season with summer following a very close second, I couldn’t pass up celebrating the day. Spring is my favorite season because it means the harsh winter storms are over, what little we had. If we get a winter storm, it will melt off fast and not be problematic to get around. This year, we had a few storms but they were mostly rain except maybe one snow but it wasn’t enough to keep me home for a day.

As the past fall and winter season came upon me, I decided that I would bide the time by taking classes. The first I took was “The Theology of Eschatology,” from September to December. My interest in Biblical End Times has been a fascination for many years. I had a few others planned, however, a few health challenges arose that kept me busily distracted for about four months. Things are great now, just in time to enjoy my favorite season.

I learned a lot during the health challenges that I plan to write about. However, coming into Spring with all it’s outdoor chores and opportunities, it might be a bit before I sit down and write. Hopefully not as I think those with the challenges of Charcot-Marie-Tooth might benefit from what I learned.

Happy Spring! Get outside this season and enjoy the beauty of God’s Creation!

Daylight Saving Time Begins Sunday, March 12, 2023

(C) 2023, Isaiah Jacobs

Daylight Saving Time begins tomorrow. When I was working in an office, this was one of my favorite days of the year because it meant I could spend more time outside after work.

Now that I am retired, it really doesn’t matter to me because I can be outside anytime of the day that I want. I just anxiously wait for the warmer weather to settle in for the season so I can be outside!

Remember, set your clocks ahead one hour before bed Saturday evening, March 11. You don’t want to miss church on Sunday!

Happy Spring!

(C ) 2022, Isaiah Jacobs

Happy Spring! It is finally here. Although I have to admit, that was the fastest winter season I have ever been through in my life. Maybe it’s because it didn’t really stay cold the entire season like it so often does. Also, being retired, I don’t have to go out in it to fight snow/ice to or from the office. Or, it could be as you get older, time goes by faster… I will leave that one alone.

The winter season was different for me this year too. Since we moved south, I was curious how much our weather might be different though the move was only an hour away. We have more snow and colder temperatures by up to 5 degrees. Well, we are near the mountains which affect the weather. Also, not being in town with concrete and asphalt will affect temperatures too. Last summer, we were warmer than the northern area but not as nearly as hot.

Either way, it’s Spring. The warm weather is on its way. I will be outside enjoying as much of it as I can. I hope you do too.

Daylight Saving Time Arrives – Tomorrow

(C) 2022, Isaiah Jacobs

My favorite time of year is coming soon. Tomorrow begins Daylight Saving Time at 3 a.m. Of course, I think I will sleep right through it until time to get up for church at 6 a.m.

This is my favorite time of year because it means if we have snow or other wintry weather, it will melt sooner than in the winter months, warmer days are coming, and I happen to enjoy the extra hours of sunlight at the end of the day. Before I retired, I especially enjoyed it because I could come home from work and enjoy the outdoors a few hours before dark. Also, it meant days off in warm weather were coming soon!

Tonight before bed, turn the clocks one hour forward. “Spring Forward!”

Daylight Saving Time Begins!

(C) 2021, Isaiah Jacobs

A-h-h-h-h Spring! According to the calendar, the first day of Spring is next Saturday, March 20! Tomorrow begins Daylight Saving Time once again! For that, I am happy! Why? It usually means the really cold weather is gone, no more snow or ice storms, and warmer weather is on the way. We have had some snowstorms in late March, I remember a few in early April too, but they melt away very fast- a great way to celebrate snow, here today and gone tomorrow.

Being retired from a career of 33 years and having more time at home, my schedule has changed to where I can be outside more than ever before. The time change means the days will be warmer soon and I can get out with my dog to enjoy whenever I want which is a blessing!

Don’t forget-

Spring forward

One hour before bed tonight!

Happy Spring!

“Happy Spring”
(C) Isaiah Jacobs

Ahhhhhh! Spring! I am so happy it is Spring! My winter was nowhere near what was forecasted and saw very few snowstorms. Though last November we had snow but it melted off quickly. It fooled me as I was anticipating it to be the beginning of a very long winter.

We start this spring with a CO-VID-19 pandemic outbreak. Stay safe!

Happy Spring! We will get through this and be on to fun Spring activities soon!