Charcot-Marie-Tooth: Railroad Safety Week, September 18-24, 2023

CSX Railroad in Ashland, VA
(C) 2023, Jack Bruce, Jr.

If you have read a few of my posts, you know I enjoy parking my car trackside to watch trains go by. I will take my tablet with railroad magazines and several books on it, my camera and video camera, and, most importantly, my dog, park my car safely by railroad tracks, and wait for the train to come. This hobby is pretty popular and is called railfanning. Someone who participates in it is referred to as a railfan. 

Occasionally, I see other guys doing the same thing, especially on weekends, but without a dog. Mine goes with me for many reasons that will be shared later in another post. For general information, I wouldn’t enjoy my outings as much without her. And, trust me, she is securely harnessed in the backseat with windows rolled up enough to prevent her from getting out but still has fresh air.

As with many things in the life of a Charcot-Marie-Tooth (CMT) patient, railfanning is not something we can do without planning. It is a fun and fascinating hobby, but it can turn dangerous faster than you would think. Did you know that a train in the United States hits a person or a vehicle every three hours? That it takes a train approximately one mile to stop?

First and foremost, all railroad tracks, including approximately thirty feet on each side, railyards, bridges, and tunnels are railroad property. Therefore, they are no-trespassing areas to avoid. The railroad companies employ their own police and other security measures to help maintain safety on their property. Whenever someone cannot obey the no trespassing guidelines, it can lead to stricter measures, which may cause others not to be permitted to railfan.

I always park my car at least 30 feet from the railroad tracks and ballast. I am uncomfortable parking as close to the tracks as possible. I do this to keep myself and my dog safe. I saw a YouTube video recently where a train was traveling at a good speed with a piece of metal hanging off the side of a freight car. Apparently, the engineer nor the conductor knew it was happening. If someone were parked or standing close to the tracks, they would have been hit. Also, as CMT patients our mobility is somewhat challenged. For me, I can’t always turn and run. Obviously, I would just risk turning my ankle in a situation like this. However, staying away from the tracks, to begin with, is best. 

Regarding mobility, it takes me a few seconds more than the average Joe to move my legs and get out of the way, as I stated earlier. Trains move faster than they appear. They can come upon you before you know it. Also, the locomotives are much quieter than they used to be. I was watching trains in my usual spot when a train snuck up from behind. I was surprised but was safe as I was sitting in my car. As a kid, I remember the locomotives being so loud you knew when one was coming from a distance away. Nowadays, nope, you’re not likely to hear it until it’s upon you. 

Another concern with mobility is the ballast used around railroad tracks. Ballast are large rock. These are very challenging to walk on. I’m guessing they are a bit challenging for those who do not have deformities in their feet, too. I stay away from ballast because it can cause me to fall. If I fell on ballast, it could mean I’d seriously or severely hurt my knees. 

Crossing the railroad tracks has always been a challenge for me as far back as I can remember. Before I cross, I look both ways to ensure no trains are coming. I never ever cross the tracks when a train is coming. Since my feet will stumble, or even drop, and catch on anything and everything, I could easily trip on plenty of things such as the rails, spikes, ballast, and the list could go on. Heaven forbid I fall when a train is coming. I might not be able to get up fast enough. If I need to cross the tracks, the safest place is at a crossing. 

If there are two railroad lines, I never ever go to the middle area and wait. Why not? My type of CMT has a severe nerve component. I would not want to be in the middle of two passing trains because it could set off my nerves, causing me to feel really bad. Or even fall down. Not to mention, any debris from either train could be a problem.

Also, never try to beat a train. Or play “chicken” on the tracks. You won’t win. One morning, I was watching my Railstream camera, focusing on a busy line in Indiana. As the train came rolling up the tracks towards a crossing, a man decided to run across. The phrase “missed it by that much” comes to mind as the man nearly made it. Instead of waiting a few minutes for the train to pass, he had to be taken to the local hospital. Don’t try to beat a train. It isn’t worth it. Wait for it to go through, and then head wherever. 

Railroad tracks are meant for trains and track maintenance equipment. Do not jog, walk, or run on them or beside them. Keep yourself safe by doing those activities in areas designed for it. 

One of the most insane actions I’ve seen near railroad tracks is those who stop their car on the tracks, thinking the traffic light will turn before the train comes. Actually, you don’t know that. In many areas, trains move quite fast, and they cannot stop for you while you wait for the light to turn. Also, these people who do this don’t allow a plan of escape should a train come. They can’t go forward or backward, and traffic is coming in the lane headed in the other direction. What I like to do when approaching a railroad crossing is to slow down, being alert as to whether a train is coming so I can stop at the last minute. Also, I notice whether I can get safely across if I have to stop for traffic or a traffic light on the other side. My wife says, “You’re hoping to see a train, aren’t you?” The answer is always “YES!”

If you are into photographing trains, always photograph safely away from the rails. Never pose people or animals on or close to the tracks. This is a very dangerous thing to do because, as I mentioned, the locomotives are quieter these days. As a photographer, I know I adjust my camera settings to create the perfect exposure, which can be a distraction, causing me not to notice a train coming. Also, if someone gets hurt, you can be held liable for any damages that happen. 

Railroads, watching trains, photographing, or creating videos of trains is a fun and interesting hobby. I’ve enjoyed sharing my photography and videos on social media for those who cannot get out themselves. Help keep this hobby safe for everyone by learning the laws regarding watching trains and following them at all times.

Do your part, and encourage your friends to do the same, to be safe around railroad tracks. This way, you can be around for a long time to enjoy them.

Happy Birthday to Me!

(C) 2023, Isaiah Jacobs

Yes, earlier this year, I celebrated my 60th birthday, and am so happy to have reached this milestone in my life! I know, you think I am a bit crazy, right? Well, no, not really. I could get all depressed about getting another year older, but that’s a negative way of looking at things, especially the blessings in your life.

God doesn’t promise us another minute or day in this life. Every minute of every day that I live, I am thankful. It’s a gift God has given me. Sometimes, I wish I’d done more in my life, such as working in a management position in my career. Frankly, Charcot-Marie-Tooth (CMT) would have prevented me from being the best I would need to be to work in that type of role. However, I was able to work a career at the highest level that I was comfortable with and have a pension to retire. They say, I could have worked longer and made more money. I say I have had too much fun in retirement with my wife, dog, and cat to trade it for more money.

Another point for me, at 60, I am still walking. Yes, I wear braces for any distance passed a 1/2 mile. Sometimes, when I am walking on unfamiliar surfaces or known challenging terrain, I will use a cane to help with balance. However, I am not confined to a wheelchair as was the original prognosis when I was in my twenties. Sometimes, it is a bit painful to walk, but, the moments of walking with my dog are absolutely priceless, and I wouldn’t give them up for anything.

In a few weeks, my wife and I are taking off on a short trip to celebrate my 60th birthday. We’ll head to the infamous Horseshoe Curve National Historic Landmark, Altoona, PA, as well as some smaller towns, Lilly, Cresson, and the Portage area where I will photograph and video trains. Our meals will be at our favorite places, Texas Roadhouse and Perkins. Since neither are located near us now, we enjoy them when we can. We did this trip a few years ago and enjoyed ourselves.

My wife bought me three bluebird houses that I have had my eyes on for a while. I enjoy watching birds. Now that I own some land, I am converting part of the yard back to nature which will include a bluebird house trail. She knows my love for nature so she wanted to celebrate my 60th in a big way.

Though God told me He would be my strength and ability if I just trusted in Him, I never dreamed that He would make me so happy at sixty years old doing more than I imagined.

So happy birthday to me. I’m happy how God has blessed me to live this long in life.

Finding A Hobby, Part 2

“NS 8081 leads through the Shenandoah Valley”
Photo by Brian Breeden on Unsplash

As I mentioned in my previous post, Finding a Hobby, Part 1, I think people who have a disability, especially Charcot-Marie-Tooth (CMT), should find a hobby to occupy their time helping to keep their minds from focusing on their health problems. Hobbies distract from thinking about the aches, pains, and what you cannot do. I started using hobbies to deter my attention several years ago and will probably continue forever. It has allowed me to explore the world!

When I retired, I moved to an area near where I grew up. On moving day, I was pleasantly surprised to hear train horns in the distance. I had forgotten about the trains. How could I? There weren’t trains near my previous home, I was busy with life including my marriage, a career, and trying to stay ahead of CMT.

After settling into my home, and hearing more train horns, I became interested in seeing trains roar by so I started exploring the area. I quickly found places where I could safely, and legally, watch trains go by and photograph too.

I became interested in trains as a young boy by spending time every summer at my grandmother’s house in West Virginia and living near the Southern Railway. She lived across the street from the mainline of the Chesapeake and Ohio Railway. To me, besides hanging out with my grandmother, the trains were the greatest highlight of my summer. It didn’t hurt that I lived not far from the railroad tracks of the Southern Railway where I often heard train horns, including whistles from steam engines.

So I dove deep into the Railfanning hobby doing as much as I could possibly do. I met some great people who enjoyed the hobby immensely. I learned how to chase trains, where great train watching locations are throughout Virginia, West Virginia, Maryland, and Pennsylvania. I found some great websites, a few historical societies, and several magazines which provided me with a wealth of railfanning information about trains and railroads. I was hooked. I learned how to use technology to determine when a train could be coming by and how to get to the tracks in time to see it.

Since I cannot always drop what I am doing to go watch trains, I found two great streaming websites where I can watch trains from around the country. One offers streaming from other countries. I subscribed to Railstream and began streaming trains on my devices any time I want. The other site, which I haven’t subscribed to yet is Virtual Railfan. Virtual Railfan offers free views of some cameras on their YouTube channel too.

I enjoy this hobby immensely. However, it wasn’t too long before I was overwhelmed. This happens with CMT people. A hobby shouldn’t overwhelm. So much to learn, so much information coming at me, and so much stuff fellow railfanning guys said that I had to know, it took the fun out of the hobby. So I took a step back. I don’t want to be “overwhelmed” with a hobby as it’s supposed to prevent me from being “overwhelmed” with my disability.

After much thought about how I can enjoy the hobby without it being overwhelming, I took a step back and tried to determine what I like best about railfanning and trains. For me, I don’t think I need to know every single detail in the entire universe of every single train which goes through every single community and train-watching location that I could watch throughout the entire universe. Nope. I just want to enjoy watching the trains go by, creating videos, and photographing. I have found Classic Trains and Trains Magazine to be my favorite publications. These magazines have websites where subscribers can learn more about trains. Also, the publications of the Chesapeake and Ohio Historical Society and the Railway and Locomotive Historical Society are my favorite as they are well-written publications aiding the person new to the hobby to understand much more.

My point is to find a hobby that you enjoy. Decide what you enjoy about it and get into it. If you should get discouraged about your symptoms of CMT, get into your hobby to make time to relax. However, do not use it as an escape to a point of neglecting your health and not seeing your doctor or following their advice.