Charcot-Marie-Tooth: Being Thankful, Happy Thanksgiving

A part of my life, especially since I was diagnosed with Charcot-Marie-Tooth (CMT) has been to be thankful. It’s been a deliberate focus that makes me think about the aspects of my life for which I am grateful. In the early days of the diagnosis, I had a hard time being thankful, especially in light of being diagnosed with a rare, non-curable disease.

I am thankful for God and His Love for me. It is a great comfort to me to know God loves me and is in control of my life. God has forgiven me of my sins and wrongs, giving me eternal life with Him. I am extremely thankful. If you would like to learn more, please visit To Know God.

God guided my steps in life to various medical and holistic professionals who have helped me feel better and have a better quality of life. I would probably feel more of the effects of the disease, if not all of it, head-on if it weren’t for these groups of people.

There are more than a bazillion times that I have been thankful for God’s Love for me and helping me in my lifetime battle with CMT. I would not have been able to make it this far without His Help.

Life is a gift; be thankful. Every morning, I am grateful to see my beautiful wife, cat, dog, and the sun shining. I am grateful to be alive and to go about my day doing what I love.

I might not be able to enjoy every single activity that my heart desires because of CMT, however, I can enjoy many of them, such as traveling, so I get out there and do it. And, sometimes I live vicariously through other’s experiences.

I am very thankful for my wife. My life would probably be considerably more boring if I hadn’t married her. We recently celebrated twenty-eight years of marriage. In that time, we’ve had life’s challenges, traveled the world, worked through our health challenges, and our parents’ illnesses and passings.

I dare say that if it wasn’t for my wife, I may not be as healthy as I am. She has encouraged me when I was discouraged. She’s made suggestions for doctors or treatments or to try something another way that might work better.

I am thankful for my “grandson.” A few years ago, a young man cared for my animals while I traveled. When he came by to be paid, we spent nearly four hours talking. We found we have quite a bit in common. He nicknamed me “Grandpa” because of our age difference. We get together once a month or so to catch up on everything! Usually, we get together and can’t stop talking, so we’ll be there for three or four hours that will easily seem like only thirty minutes.

I look forward to our time as I usually learn about God’s blessings to him.

I am thankful for my two best friends. In college, I made friends with two guys I will never forget- try as I might. They became my best friends and helped me considerably with the diagnosis of CMT. God put them into my life for that reason.

A few years ago, I caught up with Ed after his wife had passed away. I attended the celebration of life. Afterwards, I told him he was welcome to come visit and get some rest after losing his best friend/wife. He took me up on it, and I am thankful he did. We reconnected like we just saw each other last year.

Last December, I was surprised by Tony who was coming to Washington D.C. on a work project. After thirty-two years, we spent three hours chatting at a Cracker Barrel. It was priceless.

In October of this year, the three of us got together for a week at Tony’s house, where he lives with his wife and children. The week was priceless. We laughed, assembled puzzles, and saw parts of Boise, Idaho, and Oregon. The Idaho Reptile Zoo and the World Center for Birds of Prey were favorites that I plan to visit again.

I am thankful for my sister. It’s nice to be able to pick your family. I have a friend who has been awesome over the years. We share stories about how God has been caring for us or how we see His work in our lives. She gets together with my wife and me occasionally, and it’s always a lot of fun. Often, her comments about God in her life help me to keep focused on Him too.

I am thankful for family and friends. I have a few family members and friends that I am very thankful to have them in my life. They have been loving and taught me many things to shape me into the man that I am today.

I am very picky on who I call friend. The friends in my life are few but they are because we have managed to develop a Godly relationship that has been encouraging to both of us. There is no pretense. No gossip. No fluff-fluff.

Last but not least, I am thankful for my readers. It is for you that I write stories with tips about living with Charcot-Marie-Tooth. I am grateful that you took the time to read my posts and comments.

My list of thankfulness could go on forever. However, I will stop here and wish you a blessed Thanksgiving.

Charcot-Marie-Tooth: Happy Thanksgiving!

(C) 2022, Isaiah Jacobs

Thanksgiving brings to mind many things in life for which I am thankful. Although I try to remember to be thankful every day, it’s good to have a day to focus on it.

I am very thankful for God and His Love for me. Ever since I became a Christian many years ago, I have seen God’s Work in my life in every situation even at times when I wouldn’t think He would do so. I am thankful that His Gift of Salvation that guarantees me, and everyone else who believes, eternal life in heaven.

I am thankful for my wife of twenty-six years. She has been an awesome help with my Charcot-Marie-Tooth (CMT) battles and a wonderful companion to spend life with. Only God could prepare a woman like her to be the right companion for me.

I am thankful for my dog, Abby, and my cat, Samson. Abby is a young black labrador retriever who keeps me going. As I will share more details in another post, having a dog to care for every day has helped me to be successful in staying a step ahead of CMT. My cat has had his role too. Many evenings when I head to bed, my cat will curl up on my shoulder and purr. Somehow, he seems to know when I need some extra purrings and goes into an amazing-sounding purr mode. It usually helps me to relax.

Today, at 59-1/2 years old, I am thankful to be alive, walking, and enjoying life. The original diagnosis of CMT, lead me to believe that things could be very different at this age. In some ways, it is, but God has blessed me to keep going forward in life. For that I am thankful.

However you are celebrating today, remember to be thankful for the many blessings in your life. Take the time to enjoy family and friends too. They are the most important aspects of your life.

Happy Thanksgiving! Be Thankful!

(C) 2020, Isaiah Jacobs

This year, 2020, has been a very rough year for many people. However, despite some of its challenges, there can be some positive things if you look for them. I have had a rough year too, but I focused on the positive. Here are a few thoughts.

While my Service Dog passed away this past summer season. He was my bestest friend going everywhere with me. He helped me tremendously with the many challenges of Charcot-Marie-Tooth (CMT). After quite a bit of researching, searching, looking, meeting and greeting, applying to adopt, I have been able to find another dog who will keep me company, take me for long walks, and be the “dog happiness” in my life that only a dog can provide. Eventually, she will be able to help me with my health struggles. I will share more about that later. It is an example though of something positive this year.

Another positive to be thankful for this year is for my wife and her health. She has had some serious health problems in 2020. I am thankful for her positive attitude during the doctor’s visits and subsequent treatments. She has a faith in God which truly was shown throughout her struggles. Also, I am extremely thankful that her treatments were done close to home without any trips to a major city. My concern is my challenges with driving and having to take her to the city. Though I would have done it, I am thankful I only had to do it once.

During the medical treatments for my wife. our church family and a few friends helped make the situation so much easier by being there for her and one family took to us to dinner just before each treatment. It’s one of those PRICELESS things for which I am thankful. Each time, they brought a smile to my wife’s face. For that, I am thankful.

Yes, 2020 has been very challenging. It seems that every day brought new frustrations. BUT, as I said, look for the positive! It might take a few minutes to find it but you will.

“May you have a blessed Thanksgiving

with your family and friends!

God Bless!

Happy Birthday To ME!

“A Tired Party Dog”
(C) Storyblocks, Used by Permission

Happy birthday to ME! Happy birthday to ME! Happy Birthday to ME! Happy birthday to ME! Every year on my birthday I like to celebrate that I have made it another year walking and enjoying life. I am now 56 and I am thankful for every moment God has given me.

Sometimes with the problems and issues, I have with Charcot-Marie-Tooth (CMT), I find life challenging. It seems there is never an end to them or new problems begin just as I have adjusted to the others. Sometimes I have to find assistance from a doctor. Sometimes it’s a physical therapist. Sometimes both. Oh well, that is the life of the CMT patient.

However, it’s NOT the end of the world. I learned to find the good in every day decades ago. My life is blessed with God, my wife, my dog, and my cat. Just like the past year, I will enjoy the upcoming year as well.

Happy Birthday to me!