Charcot-Marie-Tooth: ‘Tis the Season to Slip and Fall…

“Icy Sidewalk”
Photo by Jackie at Flickr Creative Commons

Oh, ice. It is a horrible substance which can cause serious injury to our bodies without our even trying. The first “Winter Weather Advisory” of the season appeared in the forecast a few weeks ago. This alerted me to cancel my evening plans and anything the next day – unless it’s something I can wait and see what the weather really does.

Having Charcot-Marie-Tooth (CMT) allows me to have adventures beyond my wildest imagination or dreams. Walking in snow, or attempting to do so on icy surfaces, creates quite a bit of challenges for me. Also, it is a season in which I practice patience hoping to grow in that trait more by spring.

If you find yourself in an icy situation, there is a trick that learned which I hope will help you too. Also, there are a few important considerations to remember.

Your feet are cold whether you know it or not. This is a thought which I drudge up every season when the cold weather settles in. It’s not intended to be negative but to remind myself to pay attention. Neuropathy can be tricky. Often, I find myself busying about my life without regard to how cold my feet might be. When, in reality and some circumstances, my feet are cold. Now, this is a different type of cold. It’s called nerve cold. Be sure to bundle up for the weather. By that, I mean you should determine what you should wear to stay warm paying attention to the weather.

Walking on ice isn’t something that can easily be done. For me, my feet move in a manner that makes slippery surfaces much more dangerous than for others. When approaching an area which is icy or could be slippery, I stop walking. Keep in mind, I tend to look ahead when walking to keep from ending up in these situations. Sometimes, it doesn’t work. If there’s no easy way to get around it, I focus on myself trying to make sure I’m not feeling rushed, stressed or anxious which could cause me to do something stupid or to fall.

Once I have assessed myself and I am ready to move, I began counting. Yes, counting. 1, 2, 3, 4… When I feel like I am ready to move, I take a step restarting my count at one. As I step, each step with a different foot is counted. I continue counting until I have gotten past the icy or difficult spot. Also, I focus on the counting. Do not allow your mind to wander or be distracted. If you focus on counting each step, it should allow you to safely get across the ice. This trick works with walking on water too.

Remember to breathe as you take your steps and walk through the icy area. It doesn’t do any good to hold your breath while attempting to walk over the ice. I found myself more than a few times holding my breathe while doing this- that’s typical for someone exercising or trying something new like this.

If you make it across the ice without falling, be sure to congratulate yourself! Sound silly? No, it really isn’t. I have learned that when I congratulate myself for even the smallest accomplishment, it is encouraging in the long run of life.

Patience? When I mention about how difficult it is for me to walk on ice and snow, it is usually because I am embarrassed about my lack of ability to do so. It often feels like a circus show that I didn’t intend to do. Invariably, someone will say that it is a challenge for EVERYONE to walk in it. I laugh to myself and think, should I share about my feet being crippled and how they move funny? Or, should I let it go and work on my patience in dealing with others? I usually let it go since there usually isn’t any advantage to sharing. And, they wouldn’t understand. By spring you’d think I’d be the most patient man on the planet. Don’t count on it.

Charcot-Marie-Tooth: Cold Weather, Socks, and Feet

“Athletic Socks”
Photo by the happiest face =) from Pexels

Oh, my word! One of the worst physical feelings when living with Charcot-Marie-Tooth (CMT) is cold feet in the winter months. If you haven’t experienced it, most likely you will. It seems to be almost impossible to avoid. This followed by the challenges of getting my feet warm again.

When I was younger, probably in my twenties, there weren’t many resources to help CMT patients. You learned what you did by thinking about ways to help yourself or by asking others their opinions. Sometimes a doctor or physical therapist will have ideas. I had family members whom I could ask questions.

First, you have to realize that cold feet are not the typical cold feet that other people have. Since the nerve endings in our extremities, hence legs and feet, are not working as they should, we experience neuropathy which allows our feet to get cold.

For me, learning to keep my feet warm, and stay warm, was quite a bit of trial and error. My favorite trick was double socks. In the mornings when my feet were still warm, I would put on two pairs of my favorite comfortable tube socks. Simple enough, right?

Wrong.

When you put on the first pair of socks, be sure to align the far point of the sock with your big toe. With a new pair of socks, especially tube or athletic, you may not notice where the big toe should go. With these, you use your best judgment and adjust accordingly. When you use this pair next time, you’ll know. Next, pull the socks up toward your knee. Do the same with the other foot. Before you put on the second pair of socks, stand up. Take a minute to walk around making sure that your feet are absolutely comfortable in the socks. Also, make sure that there are no wrinkles. Once you are comfortable in the first pair of socks, put on the second pair following the same procedure.

Why do all of that for putting on your socks? You will thank me for this. If you do not do that, it’s very possible that the socks will either not be aligned properly or have wrinkles or both. At first, I didn’t do this routine, I just put my socks on and went out the door.

Within a short period of time, I was surprised to find myself having horrible pain in my feet. However, since I was out, there wasn’t much I could about it until I got home. When I got home, I found the socks to be wrinkled and turned.

The next day I paid serious attention to the manner in which I put on my socks. The pain wasn’t happening again if I could help it.

The second pair of socks can be another pair of tube socks, dress socks, or outdoor socks which keep feet warmer in the cold weather. When the sock industry began making socks for every season, reason, or whatever that could possibly be, I found pairs that kept my feet warm without a second pair. I’ll share those in another post.