Charcot-Marie-Tooth: My 25th Wedding Anniversary

“Celebration of Love”
Photo by Samantha Gades on Unsplash

If you would have told me thirty or so years ago that I would be celebrating my wedding anniversary, much less my 25th, I would have laughed in your face! Why? As a young man with Charcot-Marie-Tooth (CMT), it was challenging enough to find a girlfriend much less one who would love me for me and looks past the deformed feet, lack of strength and ability, to love the real me.

As a young man, there were only two things on my mind. Women and sex. What else was there? Okay, so three. I wanted an education that would further me along in life. At this point in my life, I was a Christian and held to the virtues of being a Christian man, especially when dating. Why especially when dating? I was taught to respect the women I date, always treat the lady with my best manners, and have no sex before marriage. When I learned the value and responsibilities in all of that, I held onto them as I didn’t want to be disrespectful of women, nor did I want to be a very young father.

If you have Charcot-Marie-Tooth, you know your physical body is not like others. You know your physical challenges most likely will progressively worsen. And, I knew it. My feet had high arches and my muscular system doesn’t develop like other guys. I was scrawny and weighed around ninety-eight pounds. I was definitely not the hunk of athletes or even close. However, it wasn’t as important as I thought at the time.

The important thing I had to learn before I would find a wife and get married is to love myself. High arches and scrawny physical-self all of it. Also, I had to learn to be myself. I have a funny personality but if I am always thinking about CMT and its ramifications, it won’t shine through. It took more time to do all this than I had hoped but it worked.

Several years later, I met the most wonderful woman. She fell in love with me, what’s not to love, and I fell in love with her, what’s not to love? We recently celebrated our 25th Wedding Anniversary. We have been through life’s ups and downs together. She has been an awesome encourager when it comes to CMT and my challenges.

Happy Anniversary, Sweetheart.

Here’s to Twenty-Five More Years!

A Faith in Jesus

“Faith!”
Photo by Zac Durant on Unsplash

These days, there are a bazillion ways to get help with what ails you! From medications to meditations, exercises to yoga, man-made devices to holistic therapies to psychological. The list could go on and on and on but I think you get my point. These days, Charcot-Marie-Tooth (CMT) patients have plenty of choices.

While I have had to use some medications over the years to keep me from having too much pain, needle-nerve pain is the worst, it is not usually my first choice. Needle-nerve pain feels like a thousand needles prickling me. However, I have not had to take any medication for muscle pain which thrills me to no end.

My first resource when dealing with the pain, new or old, is to call on the name of “Jesus!” Yes, “Jesus!” Sometimes I repeat “Jesus” several times. And, not at all in a profane way, as some might do. I pray that He helps me to get through the challenges of the pain. He does but in many different ways -that’s for another post. Sometimes the pain returns but He is there with me to help me with it too.

Many people will ask, “well, if Jesus can help with the pain, why doesn’t He stop it?” I have to say, “I do not know the answer to that question. When I ask Him He doesn’t always answer that question. One time, I learned it was because a friend needed to see His Power. However, I trust Him and have seen His Mighty Power help me so many times it’s an incredibly awesome experience. Also, many years ago, the serious pain I was suffering led a girlfriend to become a Christian. To me, that is worth it all. While I cannot explain everything in the Bible or how God works, I would say to be careful around someone who tells you they have all the answers to your questions. If someone claims to have all the answers, RUN!

I have a simple strong faith. My faith isn’t ground in having all the answers. It is ground in the Promise that Jesus says He will never leave or forsake me. I trusted Him with my life many years ago and He has NEVER EVER let me down. And, He never will!

If you would like to learn more about the Christian Faith, Jesus, God, and the Bible, please visit Peace With God.

Encouragement with Charcot-Marie-Tooth

(C) Isaiah Jacobs

A friend of mine shared this Scripture with me a few weeks ago. I have several favorites and may have to add this one to mine.

As a man with Charcot-Marie-Tooth which seems to almost change daily, and not for the better, trusting in God and placing ALL of my cares on Him has been the greatest part of my life.

If you would like to learn more about being a Christian, please visit “Peace With God!”

Happy Easter!

“For God so loved the world, that he gave his only Son, that whoever believes in him should not perish but have eternal life.” – John 3:16

Today I celebrate the Resurrection of Jesus. He died on a cruel cross on Good Friday and rose from the dead on Easter Sunday for our sins so that we may have eternal life with Him in Heaven.

My Christian faith, the Bible, Jesus Christ, God are the foundations of my life and helps me incredibly with Charcot-Marie-Tooth. I could not handle with the pain, frustrations and aggravations without God’s help all th way.

If you would like to learn more about God’s Plan of Salvation for man, please visit Peace With God.