Charcot-Marie-Tooth: ‘Tis the Season to Slip and Fall…

“Icy Sidewalk”
Photo by Jackie at Flickr Creative Commons

Oh, ice. It is a horrible substance which can cause serious injury to our bodies without our even trying. The first “Winter Weather Advisory” of the season appeared in the forecast a few weeks ago. This alerted me to cancel my evening plans and anything the next day – unless it’s something I can wait and see what the weather really does.

Having Charcot-Marie-Tooth (CMT) allows me to have adventures beyond my wildest imagination or dreams. Walking in snow, or attempting to do so on icy surfaces, creates quite a bit of challenges for me. Also, it is a season in which I practice patience hoping to grow in that trait more by spring.

If you find yourself in an icy situation, there is a trick that learned which I hope will help you too. Also, there are a few important considerations to remember.

Your feet are cold whether you know it or not. This is a thought which I drudge up every season when the cold weather settles in. It’s not intended to be negative but to remind myself to pay attention. Neuropathy can be tricky. Often, I find myself busying about my life without regard to how cold my feet might be. When, in reality and some circumstances, my feet are cold. Now, this is a different type of cold. It’s called nerve cold. Be sure to bundle up for the weather. By that, I mean you should determine what you should wear to stay warm paying attention to the weather.

Walking on ice isn’t something that can easily be done. For me, my feet move in a manner that makes slippery surfaces much more dangerous than for others. When approaching an area which is icy or could be slippery, I stop walking. Keep in mind, I tend to look ahead when walking to keep from ending up in these situations. Sometimes, it doesn’t work. If there’s no easy way to get around it, I focus on myself trying to make sure I’m not feeling rushed, stressed or anxious which could cause me to do something stupid or to fall.

Once I have assessed myself and I am ready to move, I began counting. Yes, counting. 1, 2, 3, 4… When I feel like I am ready to move, I take a step restarting my count at one. As I step, each step with a different foot is counted. I continue counting until I have gotten past the icy or difficult spot. Also, I focus on the counting. Do not allow your mind to wander or be distracted. If you focus on counting each step, it should allow you to safely get across the ice. This trick works with walking on water too.

Remember to breathe as you take your steps and walk through the icy area. It doesn’t do any good to hold your breath while attempting to walk over the ice. I found myself more than a few times holding my breathe while doing this- that’s typical for someone exercising or trying something new like this.

If you make it across the ice without falling, be sure to congratulate yourself! Sound silly? No, it really isn’t. I have learned that when I congratulate myself for even the smallest accomplishment, it is encouraging in the long run of life.

Patience? When I mention about how difficult it is for me to walk on ice and snow, it is usually because I am embarrassed about my lack of ability to do so. It often feels like a circus show that I didn’t intend to do. Invariably, someone will say that it is a challenge for EVERYONE to walk in it. I laugh to myself and think, should I share about my feet being crippled and how they move funny? Or, should I let it go and work on my patience in dealing with others? I usually let it go since there usually isn’t any advantage to sharing. And, they wouldn’t understand. By spring you’d think I’d be the most patient man on the planet. Don’t count on it.