I am writing this post to share a few changes I am planning to make to my blog. I hope you will enjoy them and share posts with others who have Charcot-Marie-Tooth (CMT), or any other chronic illness, for that matter, as you think may benefit.
I will be sharing some tips that might be odd or off the wall for some…but that’s what makes us unique. Almost everything will be holistic and natural; however, it should be described.
I have been holding back on sharing a few tips because I was concerned about offending friends in certain circles. Yeah, a few things might be against their beliefs or standards, but they’ve helped me to relieve myself of the many discomforts of CMT. They are not crazy, wild, or inappropriate. They are ethical, helpful, and honest, but a bit different.
I am not paid by some big eastern syndicate, or a western one, either, for that matter, to write these posts. My posts are meant to help you, another person with CMT or a physical disability, have a better quality of life. I have either done them or seen someone do them, but I always think it would help us to feel better. We face many challenges, and with each of us, these can be different, even within the same family.
At almost 63, I wish I had known and done some of the things I am doing now when I was much younger. Who knows, I might have been a hunk after all.
You are welcome to send me any tips or hacks that you find helpful. Who knows, I might share it with others, giving you credit, of course. I cannot guarantee that I will write about them.
I have a sense of humor, sometimes a bit different…my sense of humor starts out as a thought, which is something I know surprises my family and friends, and goes from there. It’s not my intention ever to be mean, to hurt, humiliate, insult, or harm anyone with my humor. If I unintentionally hurt your feelings, I apologize for it upfront.
Sometimes, those of us with CMT are challenged with our everyday challenges that can be a bit more frustratingly challenging than usual and definitely more than what people without it go through. The humor is intended to put a chuckle into our lives.
Also, I don’t know if you know that nearly every single day, all 365 of them, are national something or the other days. I might write a few posts about these just for the fun of it.
Cartoons or comics? Yup, I love them. If I can find some that I think would be humorous for us, with the creator’s permission, I will share them.
Product Reviews. Once I build up enough email subscribers to share products with that I believe can be beneficial to CMT patients, and maybe others with disabilities, I will share posts about them. A few things you need to know.
First, my standard for products that I would review are pretty high. I will not be reviewing something just to review it or get a sample product. The products must be well-made, not prone to breaking on first use, and not something I would not use myself. Safety will be a top priority, too.
When I was a dog writer, I remember reviewing a dog hair net. It was a great idea. It would prevent dogs from shedding in the house. Before your fancy party, you put it on the dog so those loose hairs wouldn’t fly into someone’s food. I was set to publish when I put the item on my dog for a photo. The look my dog gave me for doing this to him was hysterical. I laughed so hard my chest hurt. The dog forgave me, I promised to use better sense in products I’d review, and I didn’t humiliate my dog in a blog post.
Now that you know hair nets are out of the question, you need to know that each reviewed product is my personal opinion of it. My opinions are not for sale, so I do not receive any payments for the review. However, I might receive a small commission if you purchase an item through specified link. This would be explained in the post. The products reviewed will be ones I received for free from a vendor or purchased myself and want to share with you.
When I am ready to begin “Product Reviews,” you will see a page on the main page where you can read about my intentions and requirements.
Never have, never will. I have never shared email addresses with anyone without the permission of the email address owner- even in my personal life. So don’t worry: when I am contacted by a vendor or anyone else, I don’t share your email address or any personal information.
Also, I have a Substack site. I recently created a Substack page to share posts from this site with others.
The URL is Isaiah Jacobs, Living with Charcot-Marie-Tooth Disease | Isaiah A. Jacobs | Substack. With this site, I want to create a family-type, possibly one-to-one atmosphere. On this website, it’s a bit hard to do. Substack offers many options that will encourage that opportunity, even for an introverted nerd like me.
At the moment, my posts are free. Of course, you can always donate and buy me a cup of tea or breakfast somewhere, instead of a cup of coffee that I do not drink these days. In the future, I might add the option to pay for a subscriber with extra benefits. We’ll see.
Social Media. At present, I am not using social media to share my blog posts. Eventually, maybe sooner than later, I will.
You are welcome to share my posts on your social media to help others. You may not take credit for or edit any posts. Please credit me, Isaiah Jacobs, as the creator of the content. And I’d appreciate it if you could let me know when you share.
While there is no cure for CMT, there are things we can do to help us feel better, have better mobility, and enjoy our lives. I hope and pray that you enjoy this journey!
While you are here, please don’t forget to subscribe to my posts by email. It encourages me to write when I have several email subscribers.
I am always interested in learning your comments through the comment section on each post.
